DeSoto brings awareness of MG to Matagorda County
Community member Simon DeSoto is bringing awareness of this disease to our community in hopes of, “Informing what this disease is and does while also giving support to our community members who have been diagnosed.”
Bay City has recognized and declared the month of June to be Myasthenia Gravis Awareness Month in Matagorda County.
Matagorda County Judge Nate McDonald and commissioners court have signed and passed this declaration to be official on June 10. Former Bay City Mayor Mark Bricker signed a proclamation that also states June to be the month of Myasthenia Gravis in Bay City.
Myasthenia Gravis is a rare, chronic autoimmune neuromuscular disease that causes “grave muscle weakness.” The weakness in muscles increases during activity and decreases after times of rest.
The muscles affected include those that control eye and eyelid movements along with the muscles that control breathing. The cause of this muscle weakness is the error of the transmission of nerve impulses from the brain to the muscles. There are treatment options so that Myasthenia Gravis can be monitored and controlled however, there is no known cure as of now.
“You live hour to hour,” said Desoto, who is living with Myasthenia Gravis for 11 years himself.
When describing what it is like to have this disease and that these patients just need more rest than most. Symptoms of this serious disease vary in degree for each patient, but they include “eyelid drooping, double vision, weakness of the face, difficulty chewing and swallowing, and weakness of the limbs,” while also not being able to participate in much exercise.
Aristotle Onassis, the late shipping tycoon and businessman who was once married to Jacqueline Kennedy, was diagnosed with Myasthenia Gravis in the later years of his life and passed away due to respiratory failure from this disease.
The month of June has been nationally and internationally declared Myasthenia Gravis Awareness Month and is now being declared and recognized in Matagorda County.